When I was 16 years old I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS). For years prior to that I had gone from doctor to doctor trying to figure out just what the problem was; I was an enigma. My condition frustrated and perplexed my doctors because my symptoms were various and seemingly unrelated. By my junior year of high school, I was bed-ridden. It took several years to be diagnosed with POTS and many more to find an appropriate treatment plan. POTS is a frustrating disease that has drastically affected my life. With the help of incredible doctors and after years of trial and error, I have been able to take my life back and am currently exploring my own career in the medical field as I train to become a genetic counselor. Despite what I have accomplished and overcome since my diagnosis 8 years ago, POTS is still something that affects me every single day.
Because of my experience, I was inspired to start this foundation to help future POTS patients. Through this endeavor, I have found an activity in which I have dedicated my heart and soul. My hope is that the Red Lily Foundation will grow and continue to assist in physician education, research and treatment. I hope that soon, with the help of our efforts and research, POTS will be a treatable syndrome. I thank you for your support in this foundation that is so close to my heart.
Meg Miller | September 2018
5K Run/Walk To STAND Was a GREAT SUCCESS!
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