I suffer from a chronic illness and have been “sick” my entire life. For years I went from doctor to doctor trying to figure out just what the problem was, but I was an enigma. My condition frustrated and perplexed my doctors because my symptoms were various and seemingly unrelated. By my junior year of high school, I was bed-ridden and nonfunctional. It took years to finally be diagnosed with the rare syndrome known as Postural Orthostatic Tachycardia Syndrome (POTS) and I am still searching for the proper treatment plan. POTS is a frustrating disease that has drastically affected my life. I have missed countless days of school and almost all social opportunities due to an undiagnosed disease that resulted in improper treatment.
I was inspired to start this foundation to help future POTS patients. Through this endeavor, I have found an activity in which I have dedicated my heart and soul. Red Lily Foundation will grow and ultimately assist in physician education, research and treatment. I hope that soon, with the help of our efforts and research, POTS will be a treatable and eventually curable syndrome. I thank you for your support in this foundation that is so close to my heart.
Meg Miller | February 2012
5K Run/Walk To STAND Was a GREAT SUCCESS!
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